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Recent breakthroughs at the Kennedy Krieger Institute are shining a light on innovative strategies to improve the lives of people living with Tourette syndrome (TS).
Their research, featured in Psychiatric Clinics of North America, reveals that behavioral therapies may be a crucial first step in managing the disruptive tics associated with this neurodevelopmental disorder.
Tourette syndrome affects roughly 1% of the global population, manifesting as motor and vocal tics—those sudden, involuntary movements or sounds that can turn everyday activities into challenges.
Compounding the issue, TS often comes hand in hand with other mental health conditions like anxiety, ADHD, and OCD, creating a complicated landscape for treatment.
Dr. Hala Katato, the study’s lead investigator and a psychiatrist at the Kennedy Krieger Institute, points to the heavy psychological toll that tics can take on people.
Evidence indicates that behavioral therapies can empower them to tackle their symptoms head-on.
These therapies help people recognize the early sensations of tics, equipping them with practical techniques to reduce their frequency and intensity.
The research highlighted several key approaches.
Habit reversal training builds awareness of tics, teaching people to replace tic-related actions with alternative behaviors, like subtly squinting to counteract eye tics.
Comprehensive behavioral intervention for tics expands on this foundation, incorporating relaxation exercises to help manage triggers that lead to worsening tics.
Exposure with response prevention encourages people to resist the urge to tic, gradually exposing them to their triggers and disrupting the cycle of premonitory urges that often precede tics.
Co-authored by Dr. Jonathan Muniz, the study emphasizes that these strategies are effective for people of all ages, from children to adults.
These straightforward interventions can seamlessly integrate into daily routines, leading to significant reductions in tic severity.
Yet, despite these advancements, many families still face barriers in accessing behavioral therapy.
Currently, only about 25% of young people diagnosed with Tourette syndrome receive these essential treatments—a statistic largely driven by a shortage of qualified providers.
The Kennedy Krieger Institute is actively addressing this challenge, working to improve access through online resources and telehealth services.
The mission is clear: eliminate obstacles to care, especially for people in rural areas or those who struggle to find in-person services.
While behavioral therapy stands out as a primary treatment, the research team is also exploring other avenues for supporting people with TS.
They are investigating the potential of medications like d-cycloserine and brain stimulation techniques to boost the efficacy of behavioral interventions.
Mindfulness practices may also come into play, potentially offering additional benefits for co-occurring conditions and enhancing overall well-being.
The aim is holistic care—not just reducing tics.
Understanding that many people with Tourette syndrome also wrestle with anxiety, ADHD, and OCD, the researchers are committed to providing comprehensive treatments that address all facets of health.
This multifaceted approach could make a meaningful difference in the lives of those coping with this challenging condition.